Wednesday, July 6, 2016

Happy Birthday Dad!

Every morning, I make his coffee and get the newspaper from the porch. He eats an orange and a banana, while he has his one cup of black coffee and reads the front page, the obituaries and Family Circus. Then he heads to the living room to say his rosaries and man the remote. (The remote control is never more than a few inches within his reach.)

Every Saturday, he hands me $10 and his winners. I take them to a convenience store not far from the house where I pick up his lottery tickets for the week.  I also purchase our weekly supply of Diet Dr. Pepper. Panic ensues if I have Saturday morning plans that don't mesh with this weekly errand.

He is a television connoisseur of America's Got Talent, St. Louis Cardinals baseball, Blues hockey and reruns of Everybody Loves Raymond. He seeks out new Hallmark movies for my mom and no matter how many times it airs, he will watch Ocean's Eleven EVERY SINGLE TIME it is on TV.

Some days, he will ask for a cheese sandwich for lunch. Other days, he prefers braunschweiger. Always drinks water at dinner. Never helps clean up. Unless there are big pots to wash. Then he will dry but only for my mom. If I am cleaning, I am on my own.

He worked for 56 years before he retired, starting his career at the age of eleven. That's why he never wanted my sister and I to work as teenagers. He broke his back for us so my mom could stay home and we could have fun.

My favorite memories of us when I was little are a little blurry. I don't remember much but I do remember rocking with him in his blue chair and getting up before dawn to go to our grocery store with him. We would leave the house around 4:30 AM and when we got to the store, he would stack potato sacks up in the back room near the heating vent so I could go back to sleep for a while. Then he would let me have the run of the store. People thought he spoiled me but, in my opinion, he was teaching me that I really could DO anything I wanted to do. He never told me something wasn't possible.

He was determined to make sure I went to college. We didn't have the money for it but he knew we could get there if our grades were good enough or if we worked hard playing sports. My sister was the smart one. I played ball. My dad came to every one of my volleyball and basketball games. Even in college, he showed up as often as possible. I can still hear him yelling, "Way to go!" When my sister and I graduated from college, even though it took me a long time, he was so proud.

After he retired, my dad spent his days taking care of my nephew who is his new pride and joy.
Before the walker became a primary assistant in his mobilization, he fished often and one day per month he ate lunch with his friends from high school. Now he mostly stays in the house. Sometimes you will catch him on the front porch in his socks. Putting on shoes seems silly when he isn't going far. If you see him, you should absolutely say hello and, if you have time, stop for a conversation. He would love that.

This month we celebrate his 77th birthday. What a milestone! So many accomplishments behind him. At least 1000 more viewings of Ocean's Eleven in his future.

Happy birthday, Dad!

Friday, July 1, 2016

Wishing for More Time

While my life rapidly evolves due to the changing health of my parents, there are many circumstances that add to the pressures of making sure their golden years are golden. Balancing my finances is the biggest challenge as I work to maintain two homes. It would be a dream to work just one job and make enough money to take care of all of us. The most fun part is creating weekly menus, grocery shopping, and cooking. I LOVE that part. If I could create menus, shop, and cook for 20 people every week, I would. My least favorite responsibility is the cleaning. Making sure my parents are living in a healthy and safe environment is a daily priority. The one thing I need more of is... time.

I always feel so pressed for time. Even when I am broke until the next payday (which is often 4 or 5 days away), all I can think about is how time is running out. The changes in my mom are becoming more and more visible. My dad has discovered a sudden burst of energy and responsibility. Yesterday, he sneaked out of the house on his own, in the rain, and drove to the doctor. He also jumped in yesterday and helped with mom's medicine. On days like that, I feel more pressure to take care of my dad better. Part of that effort is making sure my dad has time to connect with his brother.

My uncle who is a priest and a Franciscan monk, also has Alzheimer's. Six years younger, he is my dad's only brother. He was diagnosed a few years before my mom and his order shipped him off to Wisconsin to an assisted-living home specifically designed for Franciscans. I have been able to take my parents to see him twice but now,  my uncle is swiftly declining.

Much like my grandfather, my uncle has recently become a bit aggressive and this has resulted in a shift in his residence. We used to be able to take him out with us. We could go to the lake or shopping or to a restaurant. But now, he is restricted to the property and every report comes with news of more change.

This summer, we will make the 7-hour trek to Manitowoc, WI to see my uncle again. Tearfully, my dad informed me that this could be our last trip to see my uncle. I extended our plans. We will stay a little longer so my dad can just sit with my uncle. We will celebrate my uncle's 45 year anniversary as a monk. There will be a special mass. We will also celebrate my dad's 77th birthday and my nephew's 14th birthday. We will spend TIME with family. Time which will inevitably feel too short. As it does every day.

I worry that seeing my uncle will create a greater fear in me regarding the future for my mom. But I will be strong because it is what I do. And I will keep working to make sure my parents' senior years are good and safe and as perfect as possible. And I will work three jobs if I have to even though it will take away from the time we so desperately need.

The clock keeps ticking and I keep chasing after every single minute with no regrets.

Inside Her Mind

Sometimes I think there is so much going on in my mom's head that she can't focus on what is going on around her. Often when I am talking to her, she will think she has responded but she hasn't said a word.

As long as I can remember, my mom has talked to herself. When I was little, she talked out loud a lot. In my teen years, I would tease her.

"Who are you talking to mom?" I asked.

She laughed, "Myself!"

Now, however, everything is stuck in her head. Her facial expressions change and she shakes her head. Sometimes she will move her hands or even pound her hand on the table. Most often, she seems angry when she is talking to herself. It was so funny to my when I was a kid but now I worry as I see her falling deeper and deeper into her own thoughts and, on many days, unable to express herself.

My need to understand what is happening with my mom's brain has become more urgent.

As I research, I thought I would share some helpful links for others in the same situation.

http://www.alz.org/alzheimers_disease_4719.asp

http://www.nytimes.com/interactive/2016/05/01/nyregion/living-with-alzheimers.html?_r=0

https://www.alz.org/braintour/alzheimers_changes.asp

http://www.nbcnews.com/feature/maria-shriver/embedded-inside-mind-alzheimers-n179596